[Admin]

https://www.facebook.com/groups/YoungStrokesCharleston/permalink/2576212839192355/

Here are some comments from a FB thread similar (Thread started 26th May 23 )

Lisa Lipscomb
Question?: I’m curious about the people that has or had spasticity/high tone. How long did it take to go away or get better etc? I have it a good bit in my arm and leg. My arm is almost all the way good except for my shoulder. I take medication for it. I get discouraged at times with it but I remind myself that I am blessed on how far I have come. I’m very thankful my stroke wasn’t any worse than it was. But the spasticity does make me feel down at times so I wanted to hear from people that have and are currently experiencing it.

Paul George Popa
For me it went away after smoking weed and self massages. But smoking is not good, so now I make my own tincture

Paea Peipi
the nurse tried to tell my husband one joint is equivalent to 30 cigarettes I don’t for one minute believe that

Paea Peipi
when she said pffft came out of my mouth I said what a load of bullshit

James Johnson
def is. I make my own stuff but i do get cartridges to vape and a few things from the dispensary

Dave Lark
magic butter machine

Dave Lark
I make gummy bears with an oil extraction no marijana flavour there the best

Lisa LipscombAuthor
Dave Lark what is that lol

Paul George Popa
Dave Lark can you give me the link to this recipe please 🙏?

James Johnson
Dave Lark with the butane extraction method??

Lynn Cecilia
6yrs out and I still have it. I get botox and take Tizanidine for it.

Lisa LipscombAuthor
Lynn Cecilia does the botox help? I’m scared to get botox for some reason

Lisa LipscombAuthor
It’s 4 months since my stroke. I’ve worked the spasticity out of my hand and arm. Also a very little in my leg. I stretch it daily

Christina Webber Allen
Lisa Lipscomb ya I should get it in my legs but I only can get 400 units my arm, shoulder,elbow and finger flexors need it more

Ernest Abraham
Lisa Lipscomb this is what’s so frustrating for me. my arm gets stretched daily along with my hand, I wear my splint almost all day and when it’s off I’m moving the fingers with my unaffected hand yet I still have it. and my OT can’t really do much 🙃 … See more

Lisa LipscombAuthor
Ernest Abraham thank you, my arm and hand got better pretty quickly but my shoulder has not. It feels a little better but not much and my foot and leg has it pretty bad. I’m praying that it at least eventually goes 90% away. I’m just an Impatient person 🥴

Dave Lark
Cbd oil

Lisa LipscombAuthor
Dave Lark cbd oil helps?

Dave Lark
Lisa Lipscomb stopped my spasticity

Lisa LipscombAuthor
That’s awesome!

Dima Amer
Dave Lark is it really good? My hand is so tight I’m willing to try it

Dave Lark
Dima Amer get onto it

Laura Brown Price
14 months out. Still have in my arm and comes and goes in my leg.

Dave Lark
Laura Brown Price cbd oil

Laura Brown Price
Dave Lark yes thank you this does help. I use it on my face too to help with the burning.

Dave Lark
Laura Brown Price I might put some on my hand it burns to face is just numb

Laura Brown Price
Dave Lark I have some that doesn’t burn it’s great I think it’s called Holy Trinity.

Dave Lark
I’m in Australia I get what I can the stuff I get is from Charlott web strain

Kandi Poynter
I have it very bad in arm from shoulder to fingers. Fingers are always curled. Leg not as bad I only have a few stiff muscles there. Can be miserable! I’m 18 months post and still have it! Making me crazy

James Cunningham
Im 18 post and have it bad in arm fro shoulder to fingers and leg is bad

Spiros Sotiropoulos
For my self the cold makes it worse but heat and stretching make my calf less spastic but I have to stretch my calf at least 15 min a day on the daily

Michael Harrison
What’s discouraging is I’ve come a lot an amazingly long way, but yet I have an amazingly long way to go.that can be pretty discouraging.I’m so far removed from my former abilities and that’s discouraging cuz I like working with my hands building and m… See more

Ron Reddam
Years, still not the same but better. Tried everything legally approved.

Eric Sabo
My left hand was clenched for ten years. I recently started Botox shots in my forearm to loosen my hand and it is working really well. Just working on my fine motor skills. I had on round in March and my next round of shots june 15

Randolph Mitchell
My Ot told me it never goes away

Jeffrey Haynes
Mines not went away it’s mines really bad getting Botox in the morning for it

Michael Harrison
There’s all kinds of bummers as a result of the stroke the main spastic reflects I have is in my left foot wants to point all the time and sometimes it causes me to nearly trip my voice changed as a result of the stroke and I used to be able to sing now I can’t carry tune in the bucket I can’t even carry a bucket

[Admin]

Here some more video links on you tube

https://youtu.be/z3d0MTxpInY

Ralph Preston, Mental Imagery

https://www.youtube.com/playlist?list=PLCM46GyDPC_s-FdPS0iiN_LfJ7UiyKDMm

A playlist of about 15 videos focused on Hand recovery

https://www.youtube.com/watch?v=_ELCjpovYTk

Arm and hand stretches for spasticity after stroke

https://www.youtube.com/watch?v=dBWRuy_hdoc

Saebo’s stretches for hand spasticity

https://www.youtube.com/watch?v=BvprnaIPrLo

Opening a fisted hand

https://www.youtube.com/watch?v=CSrwfm_ab1U

Hand manipulation techniques – more oriented towards Physiotherapists

https://www.youtube.com/watch?v=nC_fM7sS4oU

Keeping the hand open- using a splint

https://www.youtube.com/watch?v=_ELCjpovYTk

Arms and Hand stretches to reduce spasticity after stroke

https://youtu.be/uBi4z1hbbAQ

Improve hand function after stroke using task specific therapy

https://youtu.be/i2lSooYu2qw

Why does hand recovery take so long after stroke

https://www.youtube.com/watch?v=i0JYsLyJEnE

Best Exercises for Stroke Recovery at Home – Flint Rehab

https://www.youtube.com/watch?v=8xbh1lcUiiY

Stroke Recovery Hand exercises – Elyse Newland

https://youtu.be/tCq4kTTLRP4

Improve arm and Hand movement

https://youtu.be/g7OjxnaGFt4

Caregivers guide to arm and hand spasticity stretches

https://youtu.be/xnMfbHXiu8I

Use Kinesio Tape to improve wrist movement

https://www.youtube.com/watch?v=kQEdS5_ycek

Spasticity in hand – how to open and stretch fingers

https://youtu.be/BvprnaIPrLo

Opening the  hand after a stroke.

DISCLAIMER : As with all other information on this Website, ALL the information provided here is to be used as a resource for general information only and is not to be taken as advice or to be used as a substitute for professional diagnosis or treatment . Consult your healthcare providers to decide what is appropriate and safe for you. Stroke Support India shall have no liability for any damages, loss, injury, or liability whatsoever suffered as a result of your reliance on information in these videos.

[Admin]

Nice explanation from FB

STROKE in Siddha Ayurveda Varma Science

According to Ayurveda and Siddha sastra Stroke (pakshakadha) is a vata Roga .

When the Vital energy(prana) is blocked in the energy path called Nadis the Stroke occurs. This can be due to multiple reason
? Hridrogam -Heart deceases
?Block in nadis (nerves)
?Marma Abigadham – Trauma to Vital parts of body
?Bleeding and blocks in brain
1)Stambidha Vatam (Hemorrhagic stroke)
2) Njarambu adapu vatam( Ischemic stroke)

Mainly in Pakshagadham (stroke) The idanadi (controls left side) or pingala nadi (path way of energy which controls right side) or both are affected . This will cause complications in both sides of body depending on the Nadi(nerve) which is affected. In our body there are 72000 such mani nadis through which the pranic energy flows . Nadis run throughout our body from one Varmam(vital point ) to other such 1008 varmam points are there in our body .

Say for example

According to chintarmani marma sastra texts there are 25 main marmas in head(Varma Guru nool) ..
Another text explains about 37 marmas .Another Book called Varma oli explain 108 marma points in head . the varma injury to 6 Padumarmas of head cause immediate deth due to block in nadis or internal bleeding ,Injury to Todumarmam will cause Death slowly or will cause mental problems , stroke . Main Marma points in head are
Kondaikolli varmam
Cherumkolli varmam
Manjakalam
Sunnambukalam
Vettilakalam
Talapa varmam
Murthi varmam
Rudrakalam
Porcha kalam
Poigakalam
Pidarikalam
Penkuzhi varmam
Chuziyadi varmam
Kaduku varmam
Charudhi varmam
Ladamurthi varma
Tilasakalam
Minvettikalam
Energy imbalance or block of energy in this marmas(vital points) and nadis will lead to Stroke and other health problems

One of the main cause of stroke is Head injury in past . The injury to head in the childhood or young age will cause stroke in future ..this is because of the affected vital marma points in head . The energy or blood flow in the head gradually decrease and will cause stroke in future.

There are 84 type of Vata rogas in Siddha science stroke is also considered as Vata roga

When we come to the treatment side of stroke it differ from patient to patient depending on there body ,health,strength,culture,habits,food they eat,weather,sex,age.etc

In Siddha Ayurveda marma chikitsa treayment mainly focusing on correcting the flow of enery(prana) blood and to regain the lost strength of nerve by

External therapy
? Sarvanga adangal massage (Which is a tipe of massage which will correct the flow of prana in body by stimulating 108 vitel points and 72000 nadia in our body)
?Shiro dhara
?Nasyam
?Talam
?Kizhi
?Njavara teppu
?pizichil
?shiro basthi…etc

And Internal medicinea like

Some of the medicine used are Navakanda chudal tailam ,Amukura pavu kashayam,adhimadhura pavu kashyam,valiyangadi kashyam,padu marma kashayam,marma kashyam,kukkil nimbadhi kashyam, Amukura churnam,kozhi podi ,marma gulika,chayilya gulika,sarvanga tailam,kayarajanga tailam,uzhinja mukkutu,kaya sarvangam,kozhi kashyam,kozhi vattu ,mutta vattu,udumbu vattu, kayathirumeni oils..etc such 1000 of herbal animal and mineral origin medicines are described in Siddha and Ayurveda sastra for different type of strokes

Some of the ancient books which we refer for treatment are
-Agastya vaidhya shadhakam
-Vatanoi nidanam
-Kumbamuni vata nidanam
-Anuboga Chintarmani
-Vata nidanam 800
-Yugimuni vata nidanam
-Vaidhya kovai
-Pambatti siddhar rasavatam
-Anubava vaidhyam
..etc

STROKE in Siddha Ayurveda Varma Science

According to Ayurveda and Siddha sastra Stroke (pakshakadha) is a vata Roga .

When the Vital energy(prana) is blocked in the energy path called Nadis the Stroke occurs. This can be due to multiple reason
? Hridrogam -Heart deceases
?Block in nadis (nerves)
?Marma Abigadham – Trauma to Vital parts of body
?Bleeding and blocks in brain
1)Stambidha Vatam (Hemorrhagic stroke)
2) Njarambu adapu vatam( Ischemic stroke)

Mainly in Pakshagadham (stroke) The idanadi (controls left side) or pingala nadi (path way of energy which controls right side) or both are affected . This will cause complications in both sides of body depending on the Nadi(nerve) which is affected. In our body there are 72000 such mani nadis through which the pranic energy flows . Nadis run throughout our body from one Varmam(vital point ) to other such 1008 varmam points are there in our body .

Say for example

According to chintarmani marma sastra texts there are 25 main marmas in head(Varma Guru nool) ..
Another text explains about 37 marmas .Another Book called Varma oli explain 108 marma points in head . the varma injury to 6 Padumarmas of head cause immediate deth due to block in nadis or internal bleeding ,Injury to Todumarmam will cause Death slowly or will cause mental problems , stroke . Main Marma points in head are
Kondaikolli varmam
Cherumkolli varmam
Manjakalam
Sunnambukalam
Vettilakalam
Talapa varmam
Murthi varmam
Rudrakalam
Porcha kalam
Poigakalam
Pidarikalam
Penkuzhi varmam
Chuziyadi varmam
Kaduku varmam
Charudhi varmam
Ladamurthi varma
Tilasakalam
Minvettikalam
Energy imbalance or block of energy in this marmas(vital points) and nadis will lead to Stroke and other health problems

One of the main cause of stroke is Head injury in past . The injury to head in the childhood or young age will cause stroke in future ..this is because of the affected vital marma points in head . The energy or blood flow in the head gradually decrease and will cause stroke in future.

There are 84 type of Vata rogas in Siddha science stroke is also considered as Vata roga

When we come to the treatment side of stroke it differ from patient to patient depending on there body ,health,strength,culture,habits,food they eat,weather,sex,age.etc

In Siddha Ayurveda marma chikitsa treayment mainly focusing on correcting the flow of enery(prana) blood and to regain the lost strength of nerve by

External therapy
? Sarvanga adangal massage (Which is a tipe of massage which will correct the flow of prana in body by stimulating 108 vitel points and 72000 nadia in our body)
?Shiro dhara
?Nasyam
?Talam
?Kizhi
?Njavara teppu
?pizichil
?shiro basthi…etc

And Internal medicinea like

Some of the medicine used are Navakanda chudal tailam ,Amukura pavu kashayam,adhimadhura pavu kashyam,valiyangadi kashyam,padu marma kashayam,marma kashyam,kukkil nimbadhi kashyam, Amukura churnam,kozhi podi ,marma gulika,chayilya gulika,sarvanga tailam,kayarajanga tailam,uzhinja mukkutu,kaya sarvangam,kozhi kashyam,kozhi vattu ,mutta vattu,udumbu vattu, kayathirumeni oils..etc such 1000 of herbal animal and mineral origin medicines are described in Siddha and Ayurveda sastra for different type of strokes

Some of the ancient books which we refer for treatment are
-Agastya vaidhya shadhakam
-Vatanoi nidanam
-Kumbamuni vata nidanam
-Anuboga Chintarmani
-Vata nidanam 800
-Yugimuni vata nidanam
-Vaidhya kovai
-Pambatti siddhar rasavatam
-Anubava vaidhyam
..etc

Dr Don
Jeevadhara Ayurveda Siddha Marma Chijitsalayam
Ph.+917306743700

[Admin]

From FB|

https://www.facebook.com/groups/672357726277203/posts/2061019960744299/

Nancy Somers

It’s a thought that crosses my mind. Dec 31st is auspicious anyway and it’s hard to forget how significant that day is – for me and all who make New Year’s resolutions.

David Harper

I celebrate a little on the day but prior to it I get a little anxious.

Barbara Behring Smith

Admin

Anxious

Delanie Stephenson

I’m now able to really appreciate it.

Jessica Fulkerson

I’m thankful that I’m still here to celebrate it.

Dawn Kennedy Sandoval

I am able to always appreciate it!!

Connie Lepore

I made this and posted it on my page for my 1 year Strokeiversary…. my poor husband

Connie Lepore I saved that to my phone and I am going to use it if you don’t mind? That’s awesome. Mine is coming up on April 29th

Connie Lepore

Karen Lins DeFreest Definitely fits the 1st year!

I posted Day 1 and Monthly updates on my Facebook..i.e. 3 months (Day 95)… To 1 year (Day 365) Educating.. crying.. venting and best of all celebrating!! Those that know = Know

Amanda Ferguson

nostalgic…i always look back on how far ive come..and am grateful for that second chance at life

Nancy Higginbottom

Author

I get very anxious around my anniversary even though I know it’s unlikely to have another stroke on the same date. It’s also my birthday so I concentrate on that instead.

Wyatt Bonnett

I celebrate it

Claude Brickey

I don’t even remember the date of either stroke. I know the first one was a few weeks before my 49th Birthday around Labor Day Weekend, and I think the second one was in the summer some time.

Tami Johnson

GratefulI am still celebrating them 10years in Nov whoop whoop !!

Jon Hughes

It was so long ago I was 28, I’m now 63, I don’t really notice it at all. When I first had it, I would celebrate the day. It became my new ‘birthday’.

Heidi Michelle Wesely

Hate it but great ful another year of life

Donna Iemmiti

I CELEBRATE every year. It has been 11 years March 8th..

Patricia Valle

I don’t celebrate mine as I do not want to recall it.

 

[Admin]

Clipping Nails

As for clipping nails single-handedly this may help :

Homepage

But seems only available in US presently./

YouTube Video :

[Admin]

Bathing

[3/23, 7:25 PM] Hardeep Sodhi: Message from Prateek on our TG group :

___

All the stroke survivors who have affected hand, please tell me how do you do your daily care stuff like taking bath and especially cutting nails?

I am currently getting help from my parents but would love to know if someone has found a way out of this dependency ??

___

If any has any suggestions and experiences to share please put here, thanks.

[3/23, 7:46 PM] Aparna Bhattacharjee: My experience-

1. Firstly if you can walk upto the bathroom, fantastic. If no take help & enter.

2. Do not lock the bathroom door from inside till you don’t become confident ( which will come later)

3. Sit & take a bath. Wherever on a stool or the commode.

4. Open the tap. Even if you cannot just try 5 times you enter the bathroom. After a few days, your hand & fingers will move on its own with the tap. Move it clockwise AND anticlockwise.

5. Use the affected hand to hold the mug, with the good hand to assist it from below & pour water. Take small quantities of water initially.

6. Use your affected hand to soap any one part of your body… a little part of the non affected hand…or one leg..or the small knee….or even the small palm will do.. Rub rub rub. As much as possible.

7. Brushing your teeth – Dentists say ideally one should brush for 3 FULL minutes to maintain oral hygiene. Brush at least for a few seconds with affected hand.

 

These are tried & tested methods by me. I achieved quite a bit doing all this.

 

Good Luck Prateek.

Krishna Patel:

I am also getting help from parents, my effected hand it totally paralysed. I too would love any knowledge or tips that would help. Thank you in advance.

 

Hardeep Sodhi:

Re taking bath, this may provide some ideas ..

 

 

 

[Admin]

Priyanka Guru:

I too had a headache for two days which wouldn’t go with painkillers… Had told my husband we’d need to get it checked the next day if it didn’t go .. but next day early morning i had a hemorrhage and collapsed with fits

 

Vishnu Agarwal:

i too had severe headache from several days, and it wud aggrevate when i bend down to pick smthing.

 

the day it haopened, i hadreturned from office due to bad headache, its a clear symptom

 

Jennifer Menezes:

Yup in my case it was clearly stress

 

Vishnu Agarwal:

i too was stressed in my job

 

plus, i was overweight but anaemic / low hemoglobin

 

I am also genetically pre disposed to stroke, with gene called MTFHR.

 

if any1 has money n want to chk if thy are predisposed, they can get this test done, which costs 15K

 

AKSHAY Patil:

I too have MTHFR gene mutation , got stroke in last December @ age of 29

 

Though doctors generally don’t recommend this test even if you are a sibling of stroke survivor as cost is high and you can lead a very normal life Even if you have this gene mutation

 

Hardeep Sodhi:

https://www.apollodiagnostics.in/darrang/test/mthfr-methyl-tetra-hydro-folate-reductase-gene-mutation-homocysteinemia

 

Interesting. Cost seems to be much less now….

 

Genetic predisposition is an established risk factor for stroke. At the same time, it is ‘ non-modifiable’ so while it is good to be aware, it is better to be more focused on the modifiable factors.

 

Priyanka Guru:

The MTHFR gene has been associated with lots of other conditions… Having a particular gene mutation only increases the risk and honestly one single gene is never responsible for a particular condition .. it’s a inter play of many genes and environment together both internal as well as external… (Except of course in case of genetic disorders )

 

AKSHAY Patil:

Yes had hyper homocysteine when had stroke

 

Also if you are affected with this gene mutation having a diet that provides sufficient vitamin b12 is necessary or take B12 supplements

 

Banasri Gupta:

Banasri from Bangalore, Stroke on August 2020. Main reason was low Hemoglobin. I used to gasp climbing up the stairs.

But one weird habit I developed 4-5 months before the stroke – I used to eat lot of fennel seeds after every meal.

[Admin]

Some recent discussions on our Telegram group :

 

Hardeep Sodhi:
Have seen this video before. While symptoms are as said, it is not necessary that they occur 30 days before. Any time they occur, it is an emergency to be investigated further immediately. As for severe , unexplained hiccups that is a sign of stroke happening at that time itself, usually along with other symptoms…

https://www.womansday.com/health-fitness/wellness/news/a51566/the-scary-reason-why-you-shouldnt-ignore-your-hiccups/

Prateek Luthra:
In my case, I had a severe headache a month before stroke but the doctor thought of dengue being a reason. Please check your or your close one’s blood pressure in case of severe headache, it might be due to thickening of the blood. Very less are aware of that. I was destined to get a stroke that’s why I went to the wrong doctor.
स्ट्रोक सर्वाइवर द्वारा जनहित में जारी। ????

Hardeep Sodhi:
Indeed, as said all unusual signs need to be checked – the problem with stroke is that many symptoms are easily ignored as transient, or misdiagnosed. Rest, as you say, is destiny. But even within that let us find the strength and positivity to not only recover but inspire others as well. ..

r k:
Indeed, my father also suffered a very subtle hand weakening. He could lift grocery bags that day. Even though we went to 2 different doctors but it was mis-diagnosed even after having a high Bp. The condition deteriorated further and we couldn’t stop a stroke which could have been easily preventable.

Somiya Pulkit Mehrotra G-52:
This happened to me also, I got a headache and two days, I was lying on the bed, didn’t go out, then my MIL took me to a different doctor, and I got many injections, etc to get weakness and all, but still I had a severe headache and I was having dizziness. My aunt proposed I go to a different doctor(Neuro) and then I got a brain stroke after 4 days. That’s why, I always tell that if somebody gets a severe headache, we should go to a good doctor.

Jennifer Menezes:
Mine also was same..i had bad headaches due to a malformation and that was causing the headache. But it was concluded as a viral fever and MRI wasn’t taken…within few days I had a hemmorhage..

Prabhakaran:
Mine also the headache was diagnosed as viral fever(covid)
.infact the doctor was not wrong.bcoz I had all covid symptoms too. Latter had ischemic stroke. Even at that time also neuro doctors not used TpA injection with in the golden window period.
They feared that it could have turned out to be hemmorage due to covid.

Anjali Taneja:
My husband was also having headache since two three days he ignored and had headache related tablets.
Doctors told that it was the indication , it was too late to know the symptoms.

Priyanka Guru:
I too had a headache for two days which wouldn’t go with painkillers… Had told my husband we’d need to get it checked the next day if it didn’t go .. but next day early morning i had a hemorrhage and collapsed with fits

[Admin]

Some more responses from FB

https://www.facebook.com/groups/1637831529845863/permalink/2696183754010630/

Susan Pare ( Author ) :
Not an easy week, I was told by a medical rehab Professional, the dreaded 18 month window, I am 21 months out,likely no further recovery for my hand. I had to look deep inside and think through what that meant to me. I have been fortunate enough to have found a highly skilled neuro PT in my area to work with. I chatted with a couple of my stroke buddies here. Reviewed Dr. Tobias YouTube video on the 18 month piece and concluded. If my neuro PT will continue with me. I will not quit.

Replies :

Jutta Stingl

You can do it!

Barry North

Don’t ever quit. I know personally it takes motivation to commit to daily exercises. Keep going!

Patti Thrams

Good for you , stay strong always hope!

Martin Dillon

Bullshit I’m 2 years out and now able to slowly open my fingers with repetition it will get easier

Jana McDonald

There was a case of a man who 30 YEARS out started swimming for weight loss, noticed movememt in his hand, went back to therapy and regained use of his hand. It is possible, it’s just an uphill battle with slow progress. Don’t give up, activate your neuroplasticity, and put in the hard work.

Sandy Flanders

It is a business. If they thought your insurance would pay they would tell you to never give up. keep working on your own

Nikki Kaur

Sandy Flanders don’t let them or the stroke win. Show them how strong you are. Show stroke who is boss.

Graham Britton

Nikki Kaur I will try. I prefer to be the boss !!

Tony Perez

I don’t understand why therapists and doctors can say something like that. I remember i asked my therapist if I would ever walk, he didn’t tell me that I wouldn’t, he told me that it was possible. 3.9 years out i can walk unassisted and my arm, hand and fingers work, not 100% but they work. Never give up!!

Sandy Flanders

Tony Perez that is so strange since the statistics tell us that the majority will walk again. I am really into evidence based medicine, I don’t want their opinions

Tony Perez

Susan Paré, there is ALWAYS hope. I’m still making improvements. Never give up.

Terri Quindlen

Cr9ck of crap. Medical professionals are misinformed when it comes to stroke recovery. You will continue to improve as long as you are alive. Don’t give up and don’t stop trying just because a misinformed medical professional tells you you are done. Usually this means your insurance no longer wants to cover therapy. Go online and find therapy groups and continue to work on your recovery.

Susan Paré

Author

Terri Quindlen that is my conclusion. MybPT will continuevto work with me.

Samson Pham

My family was told by a medical professional that I was a goner since I was in a coma for like five months. All I’m saying is that professionals can be wrong

an Mccan

That’s right man has no idea of your recovery keep pushing no matter what

Maggie Mayzes

There’s always hope! Every recovery is unique and determination makes a difference!

Patti Whigham

Keep moving forward for sure.

Sharon Rogalewski

Bull shit. Keep trying. Never give up. As long as you work you will progress

Carol Disley

No time limit on recovery our brain is always learning so do not loose heart keep working on it

Nikki Ourasanit

Yes do not quit we are on the same boat here

Dean Armstrong

That’s rubbish I’m 4 Years in and still making gains you tube doctor Tara tobias look her up

Ralph Preston

Admin

Get a new one!

Vaughn Johnston

There is no time limit on recovery. Get a new Physio

Susan Paré

Author

Vaughn Johnston my neuro PT isvspwcificalybknowledgeablevandvtrained for arm and hand restoration. I wil keep her

Vaughn Johnston

Susan Paré okay, then advocate for yourself. Point her to updated research

Kristen Toepfer

Dr’s didn’t think I would make survival till morning,,priest family etc I been proof wrong since.

Get a team (dr, therapy, care) don’t accept anything but the best. It’s your life

Denise Yepsen McGowan

Never give up! Stay positive & focused. ALWAYS!

Myra Marbury

Don’t give up !! God is not finish with you yet

Tekla Krause Piercey

Before my stroke in October I had major surgery in my arm (not related to the stroke). That surgeon told me that he could just fix aspects of my arm but that I would never get my wrist mobility back. I looked at him and said “that’s what physio is for”. And I was right. I am still getting more and more mobility back and my brain is healing more everyday from my stroke. Don’t let anyone say you can’t. Just keep trying.

Susan Paré

Author

Tekla Krause Piercey you benthrougg plenty

Mollie Mihalik

Don’t quit!

Crystal Matthias

Don’t listen to anyone that tells you your recovery is done it’s only done when you say so

Rebecca Beard

I’m 3 years post still improving. Don’t give up.

Kent Stirling

Prove them wrong

Ellie Sullivan-Sellars

Recovery is lifelong

Misty Williams

Time to get another one!

John Carrillo

I ever give up going on 4 years

Edmund Tan

I’m almost 3 years out and I’m still seeing improvements.

The fact of the matter is that our brains are always rewiring for life.

Mark Mosher

Never ever give up on your recovery ❤️‍?

Marcella Celeste

Keep going, I’m two years post and don’t have use of my hand but I try daily and a few weeks ago my fingers started to move, it’s only a slight movement but that’s how my thumb started and now I can move it at will so I’m praying and hoping my fingers …

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Justin Tanpua

Been told by my nuero last December. But I can feel that I’m still recovering.

Micaela Legleu

If i may ask, What Dr. Tobias videos are you referring to?

Stay positive! My leg still doesn’t have full function after two years but I’m not giving up either

Elliot Tarabour

Don’t let arbitrary time frames dictate what you can do.

Lesley Currie

Never quit there yet there is a life after stroke, slightly altered from the plan and not what we would have chosen

Debra Foster

Keep trying it’s YOUR body , your will!

Wanda-Lynn Pledger

I was told more or less the same thing but I wish you could just say it instead of beating around the boyspeaking around the voice left me so upset I figured you jerk you just don’t want to do your job sit around so they really know done that a whole l…

Kenneth Bonnell

statistics and forecasts don’t always ring true…your brain and body are capable of more than you realize..given time and effort, many stroke residuals can be resolved…..maybe not all, but most…

Jeannie Steiner Hannemann

I am almost 7 years out and just had major improvement!! Ignore them….ignore the window…the door is open…

Stroke Support India

Never too late. The brain develops every moment.Keep working at it.

Jeff Ciborowski

I had 4 bilateral strokes in late 2013. Lost my right side toes to nose. Started getting my fingers back less than a year ago. Last year was a great year for recovery. Not where I want to be but making progress.

Raymond Alexander

Not true however keep your expectation real 6 years later I am still experiencing small gains and yes stroke arm is weak but year by year there a small improvement so all is not lost. Persevere #respect

Jessica Dengel Spicola

having the mindset that you will not quit is so important. I wish you the best

Graham Britton

I am persevering. Still cannot feel my left leg after four years. When I ask how much longer to medical people they answer”don’t know “! And one told me “you will never get the nerve responses back”!!

Jason Bott

Never stop trying or believing

[Admin]

Hardeep Sodhi:

WErFIT Mini Pedal Exerciser Portable Bike Pedal Exerciser with Calories Tracker Display – Black https://www.amazon.in/dp/B097MQRWCN/ref=cm_sw_r_apan_glt_fabc_ZBTYDNNZSQHQ9GTZXQNX

 

Any one has used this for hand excercise? Or leg ? exercises ? Useful ?

Some on our WhatsApp group bhave found it useful so thought will ask here as well…

 

Divya Laxmi:

The Best Hand Exercise Equipment for Stroke Patients – Flint Rehab

https://www.flintrehab.com/best-hand-exercise-equipment-stroke-patients/

[Admin]

this is the trial that was discussed yesterday. ( Zoom session, 5 th Dec. 2021) ..as can be seen there is a huge and long-term difference between a control group and that subjected to CIMT per protocol set out in the experiment…link to the article is :

https://www.ahajournals.org/doi/full/10.1161/01.STR.0000206463.66461.97

Lot of statistical data there but still may be interesting for all to read details.

[Admin]

Shubh:

Acupressure and acupuncture both are different?

 

Hardeep Sodhi:

One major difference…accupuncture uses needles stuck at various points, including in the scalp, accupressure uses pressure at certain points…similar to Varma therapy I think. We had a session on Varma awhile ago and think Vardhini ji here is an expert in same. Maybe she can also comment in.

 

Vardhini Thirugnanam:

Acupunture and acupressure are similar in principle but different in methodology

 

Varmam is the same of acupressure.we activate similar points with the help of our hand and no needles etc.,in acupuncture the use needles to activate the points

 

[Admin]

Prabhakaran:

On the alternate medicine topic. My therapist have tried accupuncture along with physiotherapy for shoulder and elbow recovery and gained good results.accupuncture has reduced tightness in the fingers. Due to that I am able to produce some movements.unfortunately it doesn’t work for finger extension

 

AKSHAY Patil:

That’s great to hear Prabhakaran

 

Was it scalp acupuncture or acupuncture for hand muscles?

 

Prabhakaran:

Only on hand muscles.even in the first session itself I realised the difference

 

I am not sure

Accupuncture used by only accupuncture doctor will work. Because physiotherapist knows better about muscles. Hence accupuncture by physiotherapist will be a good option.

 

Hardeep Sodhi:

Have you come across any physiotherapist practicing accupuncture ?

 

Prabhakaran:

Weekly once for 3 weeks. Now it has been stopped because of good movements in shoulder and elbow

 

Yes. My therapist undergone certificate course in accupuncture in Bangalore

 

Hardeep Sodhi:

Same PT did accupuncture and physiotherapy ? How do you conclude improvement was due accupuncture and not physiotherapy ?

 

Prabhakaran:

Initially I was not able to move shoulder for excercises. After accupuncture some movements were initiated and we capitalized on them to do excercises.

 

Hardeep Sodhi:

Interesting.. so perhaps acupuncture completed some brain ‘ circuits’ that Physiotherapy was not able to, you think ?

 

Prabhakaran:

Yes

 

Anuradha:

Yes , our physiotherapist is acupuncture specialist .

 

Hardeep Sodhi:

OK so acupuncture helps in some cases and not in others..we have had similar sharings earlier as well. Since there is no research based data, no one knows why it works sometimes and doesn’t others. Which is the problem with most alternative methods. It would also depend upon the practitioner I suppose.

That even mainstream Physiotherapists are practicing acupuncture is interesting – I’d have thought they’d be hesitant to suggest or try non-evidence based practices….

 

Anuradha:

Also it looks scary also that needles been poked into scalp , this is one of the reasons that we stopped .

 

Hardeep Sodhi:

Yes needles in the scalp do make one nervous

 

Positivity and faith is always the means to recovery, which is evident in all the chats we have had with stroke warriors till date. including the great chat we had yesterday with Dave. Even small recoveries lead to positive loops encouraging the affected to make more efforts and so even those should be marked and celebrated. As Brisa says in her “Pinky Moves” method.

 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5713240/

 

This seems like a comprehensive study of present research on acupuncture. Interestingly, it claims that even WHI recommends it as alternative / complementary treatment for stroke. Don’t know if true…

 

Sandip Luharuwalla:

I am on with Accupunter sessions weekly thrice from 6th September till date…. missed 4 sessions till date. Scalp as well as left neck, shoulder, back, hand and leg. I am experiencing positive improvements.

 

Have stopped physio since February 2021. Not experiencing any spasticity, nor taking any allopathy medication though continuing with Ayurvedic and Homeopathy medicine.

 

Accupunter Dr advice treatment for 6 months.

 

Changes I observe?

 

1. Walking, experiencing stability and strength. Recently manage to go for Tiger Reserve Nature Walk with friends both up and down hill all by myself with support of a stick which was useful at limited occasions both up n down hill all myself ?.

2. Started to experience a positive improvement in extension and flex on fingers.

3. Experience overall muscle gain across my body. Impressive was visible gap at shoulder and hand joint got completely filled.

 

My instinct sees a reasonable improvement over next 3 months.

 

Rest is better left on All Mighty for his kind blessings ?

 

I am getting treated at Kolkatta

 

 

 

[Admin]

[12/2, 2:08 PM] Aparna Bhattacharjee: One thing I’d like to share is safety of survivors & parents to avoid falls & create stroke like situations…..fixing of grip handles on the path to the bathroom… specially parents who visit bathrooms on their own…these grip handles are so cheap & easy to fix but they give immense confidence to survivors & senior citizens… Precaution is always better than cure…

MTR Heavy Duty Stainless Steel Grab Bar Steel Handle – Size (12″ (Inch)) https://www.amazon.in/dp/B07NC5NZ6M/ref=cm_sw_r_apan_glt_fabc_DJ83A4DR7P6RX2PSB5AV

12/2, 2:09 PM] Aparna Bhattacharjee: Just thought of sharing… for those who haven’t done this …please do it ?

[12/2, 3:00 PM] Arvind Chittor: Ishro Home Anti Skid & Multipurpose RubIHr/Bathroom Mat/ Shower Mat/ Carpet/ Rugs/ Rainmat/ Swimming Pool Mat||2×3 Feet https://www.amazon.in/dp/B09C6DWSLT/ref=cm_sw_r_apan_glt_fabc_V9V27T3H2YB02CE7Y0ES?_encoding=UTF8&psc=1
[12/2, 3:00 PM] Arvind Chittor: This is another bathroom buddy for all ages.

This also has many aids and bars to help :

https://dolphy.in/handicap-grab-bar

 

[Admin]

[12/2, 2:08 PM] Aparna Bhattacharjee: One thing I’d like to share is safety of survivors & parents to avoid falls & create stroke like situations…..fixing of grip handles on the path to the bathroom… specially parents who visit bathrooms on their own…these grip handles are so cheap & easy to fix but they give immense confidence to survivors & senior citizens… Precaution is always better than cure…

MTR Heavy Duty Stainless Steel Grab Bar Steel Handle – Size (12″ (Inch)) https://www.amazon.in/dp/B07NC5NZ6M/ref=cm_sw_r_apan_glt_fabc_DJ83A4DR7P6RX2PSB5AV

12/2, 2:09 PM] Aparna Bhattacharjee: Just thought of sharing… for those who haven’t done this …please do it ?

[12/2, 3:00 PM] Arvind Chittor: Ishro Home Anti Skid & Multipurpose RubIHr/Bathroom Mat/ Shower Mat/ Carpet/ Rugs/ Rainmat/ Swimming Pool Mat||2×3 Feet https://www.amazon.in/dp/B09C6DWSLT/ref=cm_sw_r_apan_glt_fabc_V9V27T3H2YB02CE7Y0ES?_encoding=UTF8&psc=1
[12/2, 3:00 PM] Arvind Chittor: This is another bathroom buddy for all ages.

This also has many aids and bars to help :

https://dolphy.in/handicap-grab-bar

 

[Author]

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